What does it feel like to know your child is not being given a chance? It takes your breath away.
He saw my son and couldn’t stop himself from running over to me to tell me how lucky I was to have a baby with Down syndrome. He told me how this boy would change my life...
Sometimes when I’m working on my Down syndrome stories I start to believe that the world has changed more than it actually has. Some moments remind me that my life is just my own personal perception, and that we each have our own. Perception: a way of regarding, understanding, or interpreting something When I’m researching,… Continue reading There’s Still a Lot of Work to Do
He was sitting at the table by the window. When I approached, he took my hands in his, and the room disappeared. There was only he and I. His eyes were shining like diamonds, and I lost all sense of time and place, as I was drawn deeper and deeper into his full-faced smile. I… Continue reading Magic: When Your Heart is Your Guide
After hearing this story about a young man in Massachusetts, all I can say is, don't buy into what you hear about Millennials (or any other demographic group for that matter). Time magazine called Millennials "lazy, entitled, self-obsessed narcissists", and this sentiment seems to be pervasive. It's not fair. I'm a Baby-Boomer and I know… Continue reading For Everyone Who Worries About the Next Generation
The African country of Rwanda has charged into my awareness these past few weeks. A good friend, and a good man who is a warrior in the #RevolutionoftheHeart, is in Rwanda, consulting on the building of a new hospital and teaching center. The company he is working with is Partners in Health, whose approach is… Continue reading Down Syndrome Rwanda: The “Cuddle Index”
Attending the Special Olympics World Games in Los Angeles was a great way to begin the journey around the world for Down Syndrome Everywhere! In seven days, I saw Down Syndrome people from at least one hundred countries. I talked to some, took pictures with others, smiled conspiratorially with those who had that mischief in… Continue reading Around the World in Seven Days
"He's a wonderful little boy, yet we all know that he will plateau at a 3rd, or maybe 4th, grade level.", the district psychologist said to me, without a hint of shame. Sometimes I think we just have to wait until the ones who are stuck in their old ways of thinking move on to… Continue reading Old School
Here he is. Growing up with only brothers, I knew I would have a son someday. Eight pounds of new, fresh skin and bones, a tiny little nose and fingers that just curl around my pinky. He is here; the one I dreamt about while he grew inside. Now he’s gone. They tell me he… Continue reading Here He Is!